Knowledge: cystic fibrosis
See Also:
- health → conditions and diseases → chronic illness
- health → conditions and diseases → endocrine disorders → pancreas → diabetes
Links
- MyCysticFibrosis.com
http://www.mycysticfibrosis.com - Personal management tools to help track important health measures, together with in-depth articles and personal support from site specialists. Members can share data with caregivers and their healthcare team.
- Cystic Fibrosis Resource Center
http://www.healingwell.com/cysticfibrosis/ - Directory about Cystic Fibrosis, including books, medical news, articles and information, links, message boards.
- Cystic Fibrosis Health FactSheet
http://hcd2.bupa.co.uk/fact_sheets/Mosby_factsheets/Cystic_fibrosis.html - Concise factsheet on causes, symptoms and treatment of cystic fibrosis, this factsheet can also be downloaded in Acrobat format
- Cystic Fibrosis Links
http://www.goodgulf.com/cystic.html - Cystic Fibrosis Links and Information
- The Breathing Room
http://www.thebreathingroom.org - Guidance about the art of living with cystic fibrosis.
- Jewish Genetic Diseases - Cystic Fibrosis
http://www.mazornet.com/genetics/cystic_fibrosis.asp - Page with basic information on Cystic Fibrosis: symptoms, incidence in people of Jewish descent (Ashkenazi Jews), diagnosis, treatment, and screening.
- CF Prescriber
http://www.cfprescriber.com/ - Provides a place to search various databases for Cystic Fibrosis articles, links to other CF sites, a message forum and a wide variety of information on management of the disease.
- The Spirit of Lo - Inspirational Book
http://www.spiritoflo.com - Book about Cystic Fibrosis and the effects on the family. Tells the story of an ordinary family and their struggle with having a chronically ill child.
- Cystic Fibrosis Medicine
http://www.cysticfibrosismedicine.com - Provides free information to professionals involved with the treatment of cystic fibrosis. An open access section is also available to both patients and family
- Cystic Fibrosis Resource Centre
http://www.cysticfibrosis.co.uk - A source of information for cystic fibrosis patients, parents, doctors and other carers.
- Home Page-Harminder
http://student.biology.arizona.edu/honors96/group9/Page2.html - Details from an article "CFTR as a cAMP-Dependent Regulator of Sodium Channels". Also, what new treatments might devolop if the theory behind this article prove true.
- Irri Shark's Page
http://hometown.aol.com/irrishark/page/index.htm - About the '65 roses' story.
- A-Z Directory of Cystic Fibrosis Resources
http://www.cellscience.com/CFmain.html - Biomedical directory with listings of hospitals, charities, research, and information by topic and location.
- CysticFibrosis.com
http://cysticfibrosis.com/ - Internet community for cystic fibrosis patients, families and loved ones. Information on clinical trials, gene therapy, testing, associations, research and events.
- Medline Plus - Cystic Fibrosis
http://www.nlm.nih.gov/medlineplus/cysticfibrosis.html - A comprehensive source of links which provide news, overviews, diagnosing, symptoms, treatments, clinical trials, and related issues pertaining to CF.
- Clayton Bates Cystic Fibrosis Support Site
http://www.claytonbates.org - For family, friends, and other supporters to find out about the disease and offer support for Clayton.
- Pulmozyme.com
http://www.pulmozyme.com - Cystic fibrosis information, symptoms, and treatments. Pulmozyme (dornase alfa) inhalation solution, from Genentech, Inc.
- Cystic Fibrosis Western Australia
http://www.cysticfibrosis.org.au - Includes a calendar of events, information for people with CF who travel to Australia from other countries (what their healthcare entitlements are), pointers for teachers of children with CF, and a list of services and support.
- Cystic Fibrosis: Therapeutic Options for Co-management
http://www.thorne.com/media/cysticfibrosis.pdf - Illustrated article details causes, symptoms, treatment, prognosis, and other effected systems.
- YourLungHealth.org : Cystic Fibrosis
http://www.yourlunghealth.org/lung_disease/cystic_fibrosis/index.cfm - Explains this complex disease, including symptoms, causes, diagnosis, current treatments, prevention, and links to additional information.
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